Monday, June 22, 2009

What Sjogrens means to me....letter by letter

S Scary at times
J Joint & muscle aches
O Other people out there...I am not alone
G Good days....& not so good days
R Renal failure
E Eyes feel like sand is always in them
N NOT going to beat me
S Stiffness through whole body

What does it mean to you?


Denise @ Sunflowers, Chocolate and Little Boys said...

Thats cool! Sjogrens means to me a life-changing and somedays debiliating disease. Ugh. Some days I am more positive than this....I know you understand. Any knew news on a kidney trans? I have been away and need to catch up on some blog reading.

Vee said...

Delurking to leave a comment ... And also checking on how you're doing! (hug)

S = suffering
J = joint pain
O = ouchy
G = gratitude (when I'm not in a flare, I'm so grateful for those good days; I appreciate a lot more now)
R = rest & lots of it
E = education (I feel like I need to blog about my experience because so many people do not "get" what it means to have a chronic illness)
N = no (I have had to learn to say "no" to many things. Especially the notion of being superwoman. Ha!)
S = support (I've learned who my true supportive friends are.)

~ Vee from A Pixilated Life

Vicky said...

Great answers....I can relate to all of them!

I do like the N is for NO! and Denise you are right about the good dyas and the bad!