i have been here for 10 days.
i know all the nurses, doctors, and vampires on the first name basis.
i am going to get a blood infusion.
My morphine pump is my best friend.
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Living with an autoimmune disease from diagnosis to kidney transplant to HAPPILY EVER AFTER. This is my plan!
About Me
- Vicky
- Barely 40 something mom of two little pumpkins who has Sjogrens Syndrome & facing a kidney transplant. I am not a doctor, I am just a patient going through this journey. This is my story I want to share in hopes of helping others.
Sjogren's Syndrome
Sjögren's syndrome often is undiagnosed or misdiagnosed. The symptoms of Sjögren's syndrome may overlap or "mimic" those of other diseases including lupus, rheumatoid arthritis, fibromyalgia, chronic fatigue syndrome, and multiple sclerosis. Because all symptoms are not always present at the same time and Sjögren's can involve several body systems, physicians and dentists sometimes treat each symptom individually and do not recognize that a systemic disease is present
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The Need of Donors
*Every 90 minutes someone like you and me dies from needing a transplant.
*Every 11 minutes a name is added to the transplant list.
*Nearly 100,000 men, women, and CHILDREN currently await a life saving transplant.
*In the U.S. more than 1 million tissue transplants are performed every year.
*You can live a normal healthy life with one kidney.
*You can donate part of your liver and live a normal healthy life. It regenerates!
*You will forever change someone's life. You will let them spend more precious time with their children, grandchildren, and family and friends.
*You will be a hero.
YOU have the Power to Donate LIFE, be an Organ and Tissue Donor.
*Every 11 minutes a name is added to the transplant list.
*Nearly 100,000 men, women, and CHILDREN currently await a life saving transplant.
*In the U.S. more than 1 million tissue transplants are performed every year.
*You can live a normal healthy life with one kidney.
*You can donate part of your liver and live a normal healthy life. It regenerates!
*You will forever change someone's life. You will let them spend more precious time with their children, grandchildren, and family and friends.
*You will be a hero.
YOU have the Power to Donate LIFE, be an Organ and Tissue Donor.
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4 comments:
hi Vicky, i don't know if i have ever commented but i have been following your blog for some time now. I have sjogren's also but no kidney involvement (knock on wood).
are the DVTs causing pain in your legs that you need morphine? are you ok? why do you need a blood transfusion? you don't have to answer or maybe when you are feeling better. I hope you get home soon to your family.
Hi Erin and thanks for taking time to comment on here.
Yes, the DVT was causing pain in my leg initially, but we found out that it was an infected DVT.
They cut from the back of my knee down to the back of my ankle...I look like "frankenleg".
It is worth it because that intense pain I was feeling is less now since they removed it all the pus and infection. Sorry...GROSS!
Morphine is what has kept me from moaning and crying myself to an unconscious state. It truely was the worst thing ever. Worse than c-sections, kidney stones, labor pains, or anything else I have ever been through.
I am having a hard time getting my hemoglobin and hemacrit up after the surgery....so a blood transfusion was necessary. I may need another tonight, but we will see. Thanks!
So sorry about your problems, Vicky!! Sending healing thoughts and prayers your way.
Hang in there Vicky! I know the process is slow and painful. There are days where you're holding on by one fingernail. There will be days though that your grip will become tighter. Just rest in the assurance you have friends and family who are rooting you on to hang on. These are the times when the "Footprints" really hits home. Know that there are one set of footprints in the sand now because Jesus is carrying you to healing.
Pam
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