Saturday, June 21, 2008

Anyone else out there??

I believe this is when it all started....the problems with my kidneys. It was back in 2000. I was actually on vicodin and had a stent running from my kidney to my bladder during my wedding and honeymoon. I had kidney stones and was told my ureters were smaller than normal. I was discharged from the hospital just short of my upcoming wedding...which was less than 48 hours away.

We suffered a miscarrige in 2002 and went through infertility problems in 2003. Fast foward to me having my 1st son born in 2004 and my second son born in 2006. I was diagnosed with Sjogren's Syndrome right after my first son was born in the fall of 2004.

I am writing my thoughts, concerns, triumphs, and set-backs on this blog in hopes to see if anyone else is going through what I am going through. I plan on getting into detail about my diagnosis. Over 4 million people have this autoimmune why do people look at me like I have 4 heads when I tell them that I have this chronic illness?? I have the two most common complaints of this disease. Dry mouth and dry eyes...amongst many other problems. Unfortunately, I also have it affecting my kidneys and I am now in Stage IV Chronic Kidney Disease. Stage V is dialysis.

When I started this blog, I was the ONLY one that mentioned Sjogrens Syndrome in my profile in all of the blogspot world!! I stand here alone and hope someone else would like to join me in educating and winning our battle with this piece of shit disease called SJOGRENS!! Care to join me??


Julia said...

Go get 'em girl!!

We both started our blogs for the same reason - to connect with others who have this stupid disease. Your wedding picture is wonderful.

There's lots of us out there, but we are scattered all over this planet.

Have you visited the Sjogren's World forum? There is a wide variety of information there but most importantly, an opportunity to chat with other Sjoggies from all over the world.

Please keep in touch and let me know how you are doing?


Vicky said...

Thanks again for your support. I added you to my favorites and will definitely keep in touch. I feel better already (mentally) since I am finding others out there. The past week has been hard for me and my family. We know what we are against, but I think it is really sinking in for me and it starting to show it in my attitude. I am normally a very positive person...but I seem to be having a weak moment right now. We just hope for the best, but need to prepare for the worst.

Lisa Milton said...

Oh, we're out there & now we're a little worried about this kidney thing.

(And by 'we', I mean me. Yikes.)

I'm glad Julia highlighted your story today.

You're in my thoughts.