Living with an autoimmune disease from diagnosis to kidney transplant to HAPPILY EVER AFTER. This is my plan!
Monday, September 14, 2009
It has been too long!
Hi to all my friends out there. It has been awhile since I last posted and I am sorry for that. I plan to get into the swing of things soon. I am doing good and still waiting for a transplant. :)
Im glad to see you posting....and I am still praying for you. Did you know it is Invisible Illness Awareness Week? I got a list of questions from their site and posted the answers yesterday. It was both scary and freeing.
Vicky - I am a 39 year old woman also suffering from Sjogren's, with not the typical symptoms, more serious and complex like yours. I'm sending all my positive energy your way and please feel free to email me (atamesq@gmail.com). I always like to speak to people who can relate to what we are going through. Anything I can do to help you get through this period - please let me know.
Barely 40 something mom of two little pumpkins who has Sjogrens Syndrome & facing a kidney transplant. I am not a doctor, I am just a patient going through this journey. This is my story I want to share in hopes of helping others.
Sjögren's syndrome often is undiagnosed or misdiagnosed. The symptoms of Sjögren's syndrome may overlap or "mimic" those of other diseases including lupus, rheumatoid arthritis, fibromyalgia, chronic fatigue syndrome, and multiple sclerosis. Because all symptoms are not always present at the same time and Sjögren's can involve several body systems, physicians and dentists sometimes treat each symptom individually and do not recognize that a systemic disease is present
5 comments:
Im glad to see you posting....and I am still praying for you.
Did you know it is Invisible Illness Awareness Week? I got a list of questions from their site and posted the answers yesterday. It was both scary and freeing.
Hi Vicky - I am so glad that you posted an update! Been thinking of you. Be well.
Happy Thanksgiving Vicky! I hope you are doing well.
Vicky, I work at MUSC and came across your blog. I hope the fact that you haven't posted in a while means you got a kidney and are doing well!
Vicky - I am a 39 year old woman also suffering from Sjogren's, with not the typical symptoms, more serious and complex like yours. I'm sending all my positive energy your way and please feel free to email me (atamesq@gmail.com). I always like to speak to people who can relate to what we are going through. Anything I can do to help you get through this period - please let me know.
Post a Comment