Thursday, December 4, 2008

Sites that help me... & update

I thought I would mention a few of my favorite blogs or websites I like to frequent. All of them on my sidebar are great, but these are my favorites!

Julia at Reasonably Well has a great blog about living with Sjogrens Syndrome. She combines her knowledge with wit and humor. What I like particularly about her style is that what I "try" to write...she does it with ease.

Also Sjogrens World is a great tool for asking any question related to Sjogrens or other autoimmune diseases. It has helped me tremendously and there is always a friendly person there to pick you up when you need it.

Now for the renal problems I enjoy Pam's blog Waiting for Transplant . She had a kidney transplant earlier this year and has loads of good info that is compassionate.

I also like The Adventures of Stacy without an "E" , but I must warn you he is not all lollipops and puppy dog tails. He combines a witty sarcastic view of being on a kidney transplant list while going through dialysis. He writes what he feels...the good and the bad.

~~~Now as far as an update~~~

I received letters from my primary and secondary insurance that I am pre-approved for kidney transplant. They deem it medically necessary. It may not sound like a lot, but that is one less thing to worry about.

I am on week 2 of Cellcept. I haven't had any serious side effects with the low dosage I am on. The tricky part is to take it with an empty stomach. I do think at times my stomach turns for a couple minutes after taking it, but other than that I can't complain.

And can I say once again....THANK YOU GOD and the creators of procrit. I had my injection this past Tuesday and I do feel less fatigued. I take it every 2 weeks now....but I may go back to once a week after the next set of blood work. I think I need it once a week again.

1 comment:

Pam said...

Vicky, that is so great about people wanting to help out! I know it's easier said than done but don't worry about the financials. God ALWAYS makes a way to meet our needs. When we heard that the meds were gonna cost us about 1200.00 a month after insurance coverage, Bruce and I both panicked. In the end God met the need by bringing to my attention the mail order pharmacy. Now we only pay about 225.00 for a 3 month supply. You're in my prayers daily. I know how taxing the holidays can be when you dealing with these health issues.