I get asked this a good bit, because on the outside I don't look sick. I hate to say that I am "sick", but in reality....I am.
Sometimes I sit back and want to scream "THIS SUCKS, I AM ON THE DAMN KIDNEY TRANSPLANT LIST BECAUSE OF SJOGRENS"! *sigh*
But I can't change what has happened to me. I can't make the decision to break it like a bad habit.
I can only make the decision to be positive and accept the things I can not change.
So, what does it feel like to have Sjogrens?
The best way I can describe is it is like the feeling you get when you come down with the flu. Your body aches and you are exhausted ....now imagine that everyday....24/7. You get use to it and some days are better than others.
The worst is the fatigue, but as I said before Chronic Kidney Disease can make you feel the same way. Weak muscles, fatigue, shortness of breath, and a general feeling like you are coming down with something.
What are some of your symptoms? What is the hardesr for you?