Well, at the end of the month I will be going to MUSC (Medical University of SC). I am happy to have specialists on top of the field to take a look at me. I will see a nephrologist and rhuemetologist. Hubs and I will take advantage of being in Charleston, SC and spend an extra day to play around. I will take pictures and post!
The second shot of procrit did make me sick about 8 hours after the injection. It was fast and only one time. BUT...I have to say that I feel like I have a little more energy. I am still exhausted, but at least I don't feel like I want to cry just because I am so tired. :)
I get my third shot of procrit today after work. Hubs still doesn't feel 100% like he can do it. He is so strong and anyone that knows him laughs when I tell them how much he HATES needles. He gets light-headed....even has passed out with bloodwork. And I have a phobia of sticking myself! I wonder if such a phobia exists.....I have it!!!
I wanted to share the Spoon Story that I came across. It makes perfect sense to all of us with a "silent disease."
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Living with an autoimmune disease from diagnosis to kidney transplant to HAPPILY EVER AFTER. This is my plan!
About Me
- Vicky
- Barely 40 something mom of two little pumpkins who has Sjogrens Syndrome & facing a kidney transplant. I am not a doctor, I am just a patient going through this journey. This is my story I want to share in hopes of helping others.
Sjogren's Syndrome
Sjögren's syndrome often is undiagnosed or misdiagnosed. The symptoms of Sjögren's syndrome may overlap or "mimic" those of other diseases including lupus, rheumatoid arthritis, fibromyalgia, chronic fatigue syndrome, and multiple sclerosis. Because all symptoms are not always present at the same time and Sjögren's can involve several body systems, physicians and dentists sometimes treat each symptom individually and do not recognize that a systemic disease is present
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The Need of Donors
*Every 90 minutes someone like you and me dies from needing a transplant.
*Every 11 minutes a name is added to the transplant list.
*Nearly 100,000 men, women, and CHILDREN currently await a life saving transplant.
*In the U.S. more than 1 million tissue transplants are performed every year.
*You can live a normal healthy life with one kidney.
*You can donate part of your liver and live a normal healthy life. It regenerates!
*You will forever change someone's life. You will let them spend more precious time with their children, grandchildren, and family and friends.
*You will be a hero.
YOU have the Power to Donate LIFE, be an Organ and Tissue Donor.
*Every 11 minutes a name is added to the transplant list.
*Nearly 100,000 men, women, and CHILDREN currently await a life saving transplant.
*In the U.S. more than 1 million tissue transplants are performed every year.
*You can live a normal healthy life with one kidney.
*You can donate part of your liver and live a normal healthy life. It regenerates!
*You will forever change someone's life. You will let them spend more precious time with their children, grandchildren, and family and friends.
*You will be a hero.
YOU have the Power to Donate LIFE, be an Organ and Tissue Donor.
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2 comments:
I hope everything goes well with your shot today. Hopefully your body is getting more use to it and you won't get as sick this time. I can't wait until you go to MUSC. I think they will be able to answer a lot of your questions and give you a little more insight into your disease. Vicky you're doing to best thing there is to do, and thats KEEP GOING. I have never heard you once say, you wish you could give up. You're so strong and ready to go to blows with this disease and that will make all the difference in the end!
How did they fine out that you have Sjogrens? I also have CKD. I am diabetic tho. You sound like you are positive person and that is what will get you thru. Cherry
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