Tuesday, July 8, 2008

Update on MUSC

Well, at the end of the month I will be going to MUSC (Medical University of SC). I am happy to have specialists on top of the field to take a look at me. I will see a nephrologist and rhuemetologist. Hubs and I will take advantage of being in Charleston, SC and spend an extra day to play around. I will take pictures and post!

The second shot of procrit did make me sick about 8 hours after the injection. It was fast and only one time. BUT...I have to say that I feel like I have a little more energy. I am still exhausted, but at least I don't feel like I want to cry just because I am so tired. :)

I get my third shot of procrit today after work. Hubs still doesn't feel 100% like he can do it. He is so strong and anyone that knows him laughs when I tell them how much he HATES needles. He gets light-headed....even has passed out with bloodwork. And I have a phobia of sticking myself! I wonder if such a phobia exists.....I have it!!!

I wanted to share the Spoon Story that I came across. It makes perfect sense to all of us with a "silent disease."


Anonymous said...

I hope everything goes well with your shot today. Hopefully your body is getting more use to it and you won't get as sick this time. I can't wait until you go to MUSC. I think they will be able to answer a lot of your questions and give you a little more insight into your disease. Vicky you're doing to best thing there is to do, and thats KEEP GOING. I have never heard you once say, you wish you could give up. You're so strong and ready to go to blows with this disease and that will make all the difference in the end!

cherrysugar said...

How did they fine out that you have Sjogrens? I also have CKD. I am diabetic tho. You sound like you are positive person and that is what will get you thru. Cherry